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Sage Congress: The synthesis of open source with genetics

For several years, O'Reilly Radar has been covering the exciting
potential that open source software, open data, and a general attitude
of sharing and cooperation bring to health care. Along with many
exemplary open source projects in areas directly affecting the
public — such as the VA's Blue
Button
in electronic medical records and the href="http://wiki.directproject.org/">Direct project in data
exchange — the study of disease is undergoing a paradigm shift.

Sage Bionetworks stands at the
center of a wide range of academic researchers, pharmaceutical
companies, government agencies, and health providers realizing that
the old closed system of tiny teams who race each other to a cure has
got to change. Today's complex health problems, such as Alzheimer's,
AIDS, and cancer, are too big for a single team. And these
institutions are slowly wrenching themselves out of the habit of data
hoarding and finding ways to work together.

A couple weeks ago I talked to the founder of Sage Bionetworks,
Stephen Friend, about recent advances in open source in this area, and
the projects to be highlighted at the upcoming http://sagecongress.org/">Sage Commons congress. Steve is careful
to call this a "congress" instead of a "conference" because all
attendees are supposed to pitch in and contribute to the meme pool. I
covered Sage Congress in a series of
articles last year
. The following podcast ranges over
topics such as:

  • what is Sage Bionetworks [Discussed at the 00:25 mark];
  • the commitment of participants to open source software [Discussed at the 01:01 mark];
  • how open source can support a business model in drug development [Discussed at the 01:40 mark];
  • a look at the upcoming congress [Discussed at the 03:47 mark];
  • citizen-led contributions or network science [Discussed at the 06:12 mark];
  • data sharing philosophy [Discussed at the 09:01 mark];
  • when projects are shared with other institutions [Discussed at the 12:43 mark];
  • how to democratize medicine [Discussed at the 17:10 mark];
  • a portable legal consent approach where the patient controls his or her own data [Discussed at the 20:07 mark];
  • solving the problem of non-sharing in the industry [Discussed at the 22:15 mark]; and
  • key speakers at the congress [Discussed at the 26:35 mark].

Sessions from the congress will be broadcast live via webcast and posted on the Internet.

Don't be the product, buy the product!

Schweinderl